Episode 5-Noah’s Never Ending Rainbow
Posted in Uncategorized by trisomyvoices on November 13th, 2007 
In this episode we hear from Dana Tehako-Esser, founder of Noah’s Never Ending Rainbow. She talks about her nephew Noah, who had Trisomy 2. Dana also discusses how her organization helps families dealing with rare trisomy disorders.
Also in this episode:
Recommended books:
Changed by a Child by Barbara Gill
Married with Special Needs Children by Laura E. Marshak and Fran P. Prezant
A Very Special Baby Book by Rhonda DeBough-Insook
Waiting with Gabriel by Amy Kuebelbeck
Announcements:
New online support group for families dealing with a difficult pre-natal diagnosis
New Trisomy 13 Awareness Bracelet at livingwithtrisomy.org
Music by David Gielan
“Darkness (Leave the Light On)”
I just wanted to say that I think this website is a wonderful idea. I happened upon it this evening and was just reading over it….and was pleasantly surprised to see a link to my new support group for families that have received a poor prental diagnosis, as I did with my son Bennett-Chadlen Roy. He was affected by Trisomy 13 and a non-severe Congenital Diaphragmatic Hernia.
ALL OF THE FOLLOWING ARE PRIVATE GROUPS!!! Membership by approval only…no one can see your posts unless they are a member.
The link to my group “Expecting-Blessings” has been altered accidently. Here is the new address, http://groups.yahoo.com/group/Expecting-Blessings/
I also have 3 other groups, “Awaiting-Angel-Blessings” for those expecting again following Infant Loss….a gift from their Angel above. http://groups.yahoo.com/group/Awaiting-Angel-Blessings/
“Wishing-on-a-Star” for those that are Trying-to-Conceive following Infant Loss. http://groups.yahoo.com/group/Wishing-on-a-Star/
“Broken-Hearted-Lullabies” for those that have opted for early birth for medical reasons and are living with regrets and heartache. I am here for you. http://health.groups.yahoo.com/group/Broken-Hearted-Lullabies/
I am currently the Moderator for the http://livingwithtrisomy13.org message boards: http://groups.yahoo.com/group/Livingwithtrisomy13/ http://health.groups.yahoo.com/group/TreasuredMemories/
Sometimes a trisomy brings with a Congenital Diaphragmatic Hernia. I am on the Board of Directors, and am a Moderator at the message boards here…. http://breathofhopeinc.com For further information my email address may be found at either of those sites.
Thank you, Melissa Roy–Bennett~Chadlen Roy’s proud mom, full trisomy 13 & chd